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Even California Does It Better—Why Not Indiana?

4/1/2025

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In California, your medical records cannot be shared without your written consent. State law--California Civil Code § 56.10(c)—is clear: No consent? No sharing. Period.

Meanwhile, in Indiana, your health information is shared without your knowledge or consent. For months, Hoosiers have called on lawmakers to secure medical privacy. Hundreds of calls. No action. No protection. Why is the Indiana Legislature refusing to protect your health data?

Even California’s largest health information exchange, Manifest MedEx, requires written permission: “Participation requires affirmative written patient consent in compliance with the CMIA.” Opt-in consent is mandatory. In Indiana, records are shared by default--without notice, without consent. Hoosiers asked for better. Lawmakers said no.
On March 26th, Ashley Grogg, founder of Hoosiers for Medical Liberty, testified in support of amending HB1003 to include:
  • Opt-in consent for health information exchanges
  • Notification for affected patients
  • Correction rights for participants

Legislators rejected the amendment. One even claimed privacy was "out of scope." Let’s be clear: Privacy is never out of scope. It is the foundation of informed decision-making. On April 2nd, lawmakers had another chance. Instead, they passed a broad “omnibus” amendment that ignored medical privacy altogether. If even California—with its reputation for government overreach—can prioritize consent, why can’t Indiana’s legislature?

Upcoming Vote on HB1003 may be heard again in the Appropriations Committee on April 10th.
Let lawmakers know: Medical privacy is non-negotiable.

📞 Call these key legislators now:
  • Rep. Brad Barrett – 317-232-9695
  • Sen. Tyler Johnson – 317-232-9466
  • Sen. Ryan Mishler – 317-232-9814
  • Sen. Aaron Freeman – 317-232-9490
  • Sen. David Niezgodski – 317-232-9534
  • Sens. Rodney Pol & Fady Qaddoura – 317-232-9404

Suggested message:

“Amend Section 82 of HB1003 to require opt-in consent for all health information exchanges. Protect Hoosiers’ right to medical privacy.”

We won’t settle for less. Protect Indiana. Protect our privacy. Now.
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